Donal: Is Occupy Over?
Ramona's Piece de la Resistance (Including Pics of Obama, Romney, FDR)
dagblog To Give Away Logoed Hairshirt To Most Effective Lamenter Of Left's Ineptitude
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Donal: Is Occupy Over? Ramona's Piece de la Resistance (Including Pics of Obama, Romney, FDR) dagblog To Give Away Logoed Hairshirt To Most Effective Lamenter Of Left's Ineptitude |
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Three nights ago, I started reading a novel that I wasn't sure I'd be able to finish. It caught my eye a while back, when I was browsing the local bookstore. That day, I put it down, but it stayed with me. So, a couple of months ago, I saw it again and bought it. But until last weekend, it remained in my car. I'm not sure what made me finally bring it into my house or what made me finally decide to read it.
As some of you already know, my mother has been living with Alzheimer's Disease for fifteen years, possibly more. During that time, I have attempted to watch some movies about Alzheimers. I rented Iris, kept it past the due date, and never opened the case. I rented Away from Her, put the DVD in the DVD player, got to the main menu screen, and turned off the TV. I rented The Savages and managed to watch fifteen minutes before I was done.
I couldn't do it. I'd start to feel a crushing pressure in my chest and I had to stop. A few years back, before I attempted to watch those movies, I promised a family member that I would read The Notebook. I didn't want to, because I anticipated a reaction similar to the one I just described. She thought I would like it though. So, I promised to try.
Turns out, The Notebook is utterly ridiculous. I know it's supposed to be this epic love story and all, but I found the romanticization of this particular disease to be a cheap way to tug at the reader's heartstrings. It made me incredibly angry. For anyone who has read and loved The Notebook, I'm sorry to burst your bubble, but an Alzheimer's patient who is at the stage where she cannot remember her children will not be able to follow a story for ten minutes, let alone throughout an entire day, complete with a lunch break and an afternoon nap. And she won't be putting on make-up and fancy clothes either. In fact, it's a good bet that she'll smell bad and have crazy hair.
I was able to finish The Notebook because it is completely detached from the reality. I wasn't able to finish those movies because they are more accurate depictions of the absolute brutality of this disease.
So, again, I'm not sure what made me want to read a book that was described in the cover notes as "heartbreakingly real" and "powerful, insightful, tragic...and all too true." But I did want to. And so finally, I did.
Still Alice portrays the decline of a woman with early onset Alzheimer's Disease. I highly recommend the book to anyone who enjoys well-written, engaging fiction. If you are, or were, close to someone with Alzheimer's, be prepared. I pretty much cried from start to finish, including the three chapters I read in public.
Alice, the protaganist, is 50 when the disease starts, or at least when she starts to notice things going wrong in her brain. The story, written from Alice's perspective, gives a straightforward, unromatic account of her diagnosis and her decline, from the little and not so little clues that lead Alice to seek a medical opinion to the ways she tries to continue to act normal even as some of those around her begin to notice that she is changing.
Through Alice's journey, I personally experienced what it must have been like for my own mother: the fear, the confusion, and the anger. It made me wish that this book had been around fifteen years ago, to help me better understand what was happening to her.
As for me, early onset Alzheimer's is the form of the disease that is most often hereditary. I am now left wondering whether I only have ten good years left, and if it is better to have the test and find out, or simply wait and hope.
Perceptive Dagblog readers know the difference between Obama, Romney and Bush:
Obama NYT today: .how President Obama’s thinking about what he once called “a war of necessity” began to radically change less than a year after he took up residency in the White House....The aide told Mr. Obama that he believed military leaders had agreed to the tight schedule to begin withdrawing those troops just 18 months later only because they thought they could persuade an inexperienced president to grant more time if they demanded it. “Well,” Mr. Obama responded that day, “I’m not going to give them more time.”...Mr. Obama concluded in his first year that the Bush-era dream of remaking Afghanistan was a fantasy...
Mitt Romney, Feb. 2012 : LAS VEGAS -- LAS VEGAS -- Republican presidential candidate Mitt Romney on Wednesday night blasted President Obama and his administration for “putting in jeopardy” the nation’s military mission by signaling it hopes to end its combat mission in Afghanistan by the middle of 2013.
Appearing at a campaign rally here shortly after landing in Nevada, Romney said Defense Secretary Leon E. Panetta’s statement Wednesday that U.S. forces would transition from a combat mission in Afghanistan next year “makes absolutely no sense.”....
George W. Bush, from May, 2003: BBC - "We do not know the day of final victory, but we have seen the turning of the tide... Free nations will press on to victory,"
Bush Afghanistan strategy : Gen. Douglas E. Lute, who had spent the last two years of the Bush administration trying to manage the many trade-offs necessary as the Iraq war consumed troop and intelligence resources needed in Afghanistan, arrived with a PowerPoint presentation. The first slide that General Lute threw onto the screen caught the eye of Thomas E. Donilon, later President Obama’s national security adviser. “It said we do not have a strategy in Afghanistan that you can articulate or achieve,” Mr. Donilon recalled three years later. “We had been at war for eight years, and no one could explain the strategy.”
Mitt Romney isn’t very far into the vice presidential selection process. But according to a dedicated band of conspiracy theorists, the pick is all but a lock: Sen. Marco Rubio.
That’s the current thinking among a worldwide collection of activists who are obsessed with the secretive Bilderberg Group, an alternating roster of global power players who loom as large — if not larger — in the online fever swamps of the fringe as the Trilateral Commission or the Council on Foreign Relations.
Read more: http://www.politico.com/news/stories/0512/76518.html#ixzz1vN5egowz
Aristotle and Plato didn’t agree on much, but they were united in identifying wonder as the origin of their profession. As Aristotle said, “It is owing to their wonder that men . . . first began to philosophise.” This idea appeals to scientists, who frequently enlist wonder as a goad to inquiry. “I think everyone in every culture has felt a sense of awe and wonder looking at the sky,” wrote Carl Sagan in 1985, locating in this response the stirrings of a Copernican desire to know who and where we are.
Yet that is not the only direction in which wonder may take us. To Thomas Carlyle, wonder sits at the beginning not of science, but of religion. That is the central tension in forging an alliance of wonder with science: will it make us curious, or induce us to prostrate ourselves in pitiful ignorance? We had better get to grips with this question before we too hastily appropriate wonder to sell science. That is surely what is going on when pictures from the Hubble Space Telescope are (unconsciously?) cropped and coloured to recall the sublime iconography of Romantic landscape painting, or the Human Genome Project is wrapped in biblical rhetoric, or the Large Hadron Collider’s proton-smashing is depicted as “replaying the moment of creation”. The point is not that such things are deceitful or improper, but that if we want to take that path, we should first consider the complex evolution of the relation between science and wonder.
[....]
Pretending that science is performed by people who have undergone a Baconian purification of the emotions only deepens the danger that it will seem alien and odd to outsiders, something carried out by people who do not think as they do. Daston believes that we have inherited a “view of intelligence as neatly detached from emotional, moral and aesthetic impulses, and a related and coeval view of scientific objectivity that brand[s] such impulses as contaminants”. It is easy to understand the historical origins of this attitude: the need to distinguish science from credulous “enthusiasm”, to develop an authoritative voice, to strip away the pretensions of the mystical Renaissance magus who acquired knowledge through personal revelation. We no longer need these defences, however; worse, they become a defensive reflex that exposes scientists to the caricature of the emotionally constipated boffin, hiding within thickets of jargon.
... We’re trying to harness photosynthesis. A key part of photosynthesis is what happens when the sun goes down. Cells convert CO2 into sugar and fat molecules. And they store the fat to burn as energy to get them through the night ... We’re trying to coax our synthetic cells to ... store far more fat than they actually were designed to do, so that we can harness it all as an energy source and use it to create gasoline, diesel fuel, and jet fuel straight from carbon dioxide and sunlight. This would shift the carbon equation so we’re recycling CO2 instead of taking new carbon out of the ground and creating still more CO2. But it has to be done on a massive scale to have any real impact on the amount of CO2 we’re putting into the atmosphere, let alone recovering from the atmosphere.
... We envision facilities the size of San Francisco. And 10 or 15 of those in this country. We need sunlight, seawater, and non-agricultural land, but you need a lot of photons to drive this. You need a lot of surface area of sunlight to do that. It’s a great use for Arizona. Lots of sunlight there.
... If we can’t get some key scientific breakthroughs within the next couple of years, it probably won’t happen in 10 years. So it’s something that’s really dependent on fundamental science. But we’re already able to do things that were once seen as impossible.
... I think the new anti-intellectualism that’s showing up in politics today is a symptom of our not discussing these issues enough. We don’t discuss how our society is now 100 percent dependent on science for its future. We need new scientific breakthroughs—sometimes to overcome the scientific breakthroughs of the past. A hundred years ago oil sounded like a great discovery. You could burn it and run engines off it. I don’t think anybody anticipated that it would actually change the atmosphere of our planet. Because of that we have to come up with new approaches. We just passed the 7 billion population mark. In 12 years, we’re going to reach 8 billion. If we let things run their natural course, we’ll have massive pandemics, people starving. Without science I don’t see much hope for humanity.
No one knows the future. Have hope.
There is a very large part of me that agrees with that. But, the pragmatist in me says that I should know. If I don't have the genetic mutation, I could still end up with the disease, but if I do have it, I definitely will. Hopefully, medicine will have advanced at that point, and I would be able to receive treatment to stop or dramatically slow it down. But here I am at the point in my life where I need to make some serious decisions. What am I going to do with the next 10 years, especially where it relates to whether or not to have or adopt children? I've always wanted kids, but I can't in good conscience raise a child for ten years only to place such a horrible emotional and physical burden on them for the next twenty.
On the other hand, if I test positive, then I have a pre-existing condition which, as things stand now, pretty much completely destroys me financially when I can't get any kind of insurance coverage to pay for expensive medication and treatment.
Mostly, I think I want to make and own a decision. I don't want to fritter away the next ten years, not sure of what I should be doing, and then have regrets either way at the end of them.
I was going to mention the insurance issue in my original comment. I don't think that you should risk a test without solid insurance. You'd be screwed with a pre-existing condition. Maybe Obama's plan will help. And since there is no treatment right now, finding out right now won't accomplish anything in terms of treatment.
That said, I think that I would have a hard time resisting if I were you.
I would find some way to do it secretly, but I would do it. My two cents, since this is up here as an item for discussion.
I've given this question lots of thought since my mom also has early onset Alzheimers. If the test came back and I didn't have the genetic mutation, it's not totally assured that I would not get it. I'd still have to wonder. But if the test came back and I did have the gene, well then I'd just be waiting for the disease. Living as if I had the disease already, 10, 20 maybe 30 years before I need to. There's no prevention or lifetyle changes that make it less likely that you'll develop the disease. It's the absence of control that makes knowing unappealing to me.
Is it unfair to a potential child? Maybe, but there are never any guarantees in life. You could get hit by a bus, catch swine flu, or any number of different things. There are never any guarantees. That said, let's say I do eventually start showing symptoms of early onset Alzheimer's down the road. I (and my doctor & family) would be more alert and aware of the symptoms, treating it early with new drug therapies that slow the progression of the disease that neither your mom nor mine had access to - and hopefully new developments to come.
Maybe it's bcause our moms are at different stages of the disease and I've been dealing with it for 8 years instead of 15, but I so don't want to know. Probably equal parts zen, cowardice and courage. If it happens I'll deal with it then. I don't think I could deal with it now.
I'm not sure how this is going to make you feel, but 8 years ago, I didn't want to know either. I'm not sure if it's because I have a better picture of the end now or if I'm closer to middle age than you are (or even in it--when does middle age actually start?).
I'd like to think that if I do get it, I'll kill myself before I become a burden. I suspect many, many people with the disease make the same promise to themselves, but they wake up feeling okay and think, I don't have to do it now, I've still got time. And when the day comes when they don't have any more time, they also don't have the ability to remember their plans for suicide.
My mom told me she was going to kill herself. I reacted as I suppose I would expect any 27 year old to react, having very little feel for my own mortality and exactly zero idea what was in store for my mom in years to come. If she was serious about it, and my desperate resistance to the idea gave her pause, I'm sorry for that. If it's what she wanted, she should have been allowed to die on her terms.
My mom went through similar thoughts about wishing she were dead rather than suffering years ago, sometimes she still does. But since having been diagnosed, she was able to enjoy my sister's wedding. She may not know what year it is, but she knows President Obama. She still knows us, though she's progressively getting worse. I think what she fears most is when it's just her body and the core self is gone. Everyone should have the right to determine their own end of life. But I'd hope if she'd made that decision it would have been about losing herself & wanting to die with dignity on her own terms rather than burdening us.
I don't doubt that the different Alzheimer's stage is a big part of our different perspectives here. I am much closer now to wanting to know than I was last year even. The more you watch someone slip away, the more positive you are you don't ever want to be in that situation.
Excellent point there.